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Scrambler Therapy

Details About Scrambler Therapy and Its Use in Australia

While we understand that while not all treatments are "endorsed", lived experienced has demonstrated some such treatments demonstrate consideration. 

CRPS Awareness #TPBF #CRPS

On December 1st, 2016, The Purple Bucket Foundation Inc. received notification that their application to have the medical device Scrambler Therapy® Technology MC-5A, CE Certification 0476, had been approved for supply in Australia and registered with the Australian Register of Therapeutic Goods. This paved the way for patients to be treated with Scrambler Therapy® Technology MC-5A throughout Australia. Also enabling practitioners/operator’s direct access to the standard official training course, which certifies the operator to the correct methodology and usage of Scrambler Therapy® Technology MC-5A and the dedicated software designed exclusively for Scrambler Therapy.

Scrambler Therapy® Technology was originally developed in Italy for the treatment of chronic, neuropathic and oncologic pain resistant to opiates, anti-seizure medications, intravenous anaesthetics and other forms of treatment. Scrambler Therapy® is a non-invasive, non-pharmaceutical approach to pain therapy.

Only a pain specialist, other qualified pain physician or specialist nurses working under a pain specialist can be certified in Scrambler Therapy, as the correct identification of placement sites for the electrodes is crucial for treatment. The Scrambler device resembles an electrocardiogram medical device in appearance. It has five electrodes the physician places on the non-painful tissue near the site of pain but never on the site of pain.
It uses an electro cutaneous method (electrodes/leads on the skin) to comfortably stimulate (like a gentle vibration), surface receptors on normal tissue that correspond to a dermatome type. This signal from normal tissue communicates a “non-pain” signal to the brain via the central nervous system that is specific to each individual. This signal is a synthetic signal of “non-pain” that the brain now recognizes as “normal self” because it travels the same pathways on the central nervous system that previously carried the “pain” message. It is for this reason, the inventor Giuseppe Marineo Ph.D., D.Sc. from the University of Rome Tor Vergata, Rome, Italy thought the name “Scrambler Therapy” was the most appropriate one.

Scrambler Therapy Has Been Used To Support and Treat:

  • Complex Regional Pain Syndrome
  • Trigeminal neuralgia
  • Brachial neuritus
  • Brachial plexus neuropathy
  • Low back pain
  • Failed back surgery syndrome
  • Lumbago
  • Sciatic pain
  • Lumbar & sciatic pain
  • Narrow canal syndrome
  • Polyneuropathy due to other toxic agents
  • Mononeuritis of unspecified site
  • Neuralgia, neuritis
  • Unspecified chronic neuropathic pain
  • Postherpetic neuralgia
  • Postherpetic polyneuropathy
  • Postherpetic trigeminal neuralgia
  • Herpes zoster myelitis
  • Other Herpes zoster
  • Phantom limb
  • Cancer pain
  • Chemotherapy-induced neuropathy
  • Oncological pain
  • Neoplasm related pain
  • Reflex sympathetic dystrophy
  • Fibromyalgia
  • Myofascial pain syndrome
  • Acute pain (symptomatic treatment)
  • Acute post-thoracotomy pain (symptomatic treatment)
  • Chronic post-thoracotomy pain
  • Other acute postoperative pain (symptomatic treatment)
  • Post-surgical chronic neuropathic pain
  • Visceral pain
  • Idiopathic pain

Scrambler Therapy Is Available Across Australia

Scrambler Therapy is currently available in these Australian locations:

  • Wodonga, VIC - 02 6023 6516
  • Kingswood, NSW - 02 4722 8100
  • Noosa Heads, QLD - 07 5447 2144
  • Subiaco, WA - 0451 178 880

Operators were trained having completed the standard official training course, which certifies the operator to the correct methodology and usage of Scrambler Therapy® Technology by Giuseppe Marineo.

It is important for healthcare providers to recognise potential nondrug therapies for treating chronic pain. Scrambler Therapy may bring a new horizon for the treatment of chronic pain related to trauma, nerve injuries, stroke, etc. Recent significant findings relating to the failings, injuries and unfortunate deaths of Spinal Cord Stimulator devices plus the ongoing opioid "crisis", this noninvasive technique, could be a tremendous step forward in nondrug solutions for chronic/persistent pain.

NOTE: At the time of publishing, The Purple Bucket Foundation have not, do not, and do not expect to receive any financial benefit from Scrambler Therapy sales. Information on Scrambler Therapy locations of operation within Australia is subject to change at any time or without notice. The Purple Bucket Foundation Does Not recommend any one particular operator of Scrambler Therapy, we only provide the known locations of Scrambler Therapy operating within Australia.

Why a “Purple Bucket”?

Why "The Purple Bucket Foundation"?

2011

In 2011 an accident (blunt force injury) changed the life of one woman – that one woman (TPBF founder) decided to make a difference by starting an Australian charity to raise much-needed awareness and education for Complex Regional Pain Syndrome (CRPS). Months passed; with no diagnosis or CRPS specific treatment.

2012

In 2012 (months after the blunt force injury) the CRPS diagnosis was given. Why did it take so long you may ask and why does it seem many didn’t know what CRPS was……….that’s exactly what the founder thought. Where can anyone get up-to-date relevant information on CRPS was the next big question…….and that’s where this journey begins.

The Purple Bucket Foundation Inc. was founded in 2012 to raise awareness support and education for people affected by CRPS and other Chronic/Persistent Pain Conditions. Due to what seemed to be a lack of awareness, support, treatments, and education throughout Australia at that time. (2011)

CRPS is Complex Regional Pain Syndrome a chronic nerve pain condition.

The Purple Bucket Foundations name originated from a time when the only pain relief for CRPS pain, suitable for the founder of TPBF, was to soak her foot in warm water with Epson’s salts. This came about due to allergies to the medication available for CRPS at that time.

The Bucket used to do this was purple – hence the name the “Purple Bucket” foundation.

CRPS is considered rare, so an Australian Charity was most certainly needed to help build a better future for people living with CRPS Chronic/Persistent Pain. You will find information and links on this website to other resources that may assist in your quest for concise information.

During a study conducted 1996-2005, with 600,000 patients throughout the Netherlands, it was found that the overall incidence rate of CRPS was 26.2 per 100,000 per year. These statistics are still considered relevant today, as there is no other official completed study to date (Dec 2018)

Early diagnosis is crucial for the possibility of treatment/s to be successful.

For an early diagnosis to be possible, patients and health care professionals must understand and recognise the ever changing symptoms of Complex Regional Pain Syndrome, CRPS.

Since our conception in 2012, we have learned a lot about what is actually happening in Australia to assist people with CRPS Chronic/Persistent Pain. We are not here to “BAG ON” about how bad the pain is (because we already know CRPS pain is excruciating) nor are we here to feed the negativity surrounding CRPS, we are here to make a difference for the better and that’s exactly what we have done and will continue doing. You will find information and links on this website to other resources in relation to, CRPS research, Chronic/Persistent Pain education, and management.

2014

Mascots and advertising characters - Creative awareness marketing

Why a Mascot, why BOH?

BOH - Bucket Of Hope (pronounced like 'Bow' and arrow)

BOH’s name stems from the abbreviation ‘Bucket Of Hope’. As The Purple Bucket Team Mascot, BOH’s job (like everyone else’s) is to help raise awareness! BOH’s mission is the same as ours: to raise awareness about CRPS, chronic/persistent pain and The Purple Bucket Foundation Inc.

Mascots, advertising characters, and coloured ribbons are common amongst charitable organisations or causes. Often a particular coloured ribbon is shared by more than one charitable organisation / cause. The orange ribbon, for example, represents CRPS awareness and many other conditions / causes (16+). BOH carries an orange ribbon for CRPS awareness at all times.

Mascots and advertising characters are typically known without even having to refer to a particular organisation or in this case a particular medical condition. BOH certainly does pull a crowd and raise interest, awareness, and education for CRPS.

When holding community events to raise funds, as well as awareness and education, having BOH to mingle with supporters and interested groups is beneficial to CRPS awareness, and helps to break down barriers that might be a hindrance in getting our message across. While The Purple Bucket Foundation Inc. typically raises funds to increase awareness and support research, our message is one of hope, hence BOH the Bucket Of Hope. A mascot like BOH creates a positive, fun experience and makes people smile………. all the while raising awareness for CRPS.  
In 2014 BOH our “Bucket of Hope” was born – created by the TPBF crew to help bring life to this cause by getting attention everywhere and anywhere. BOH not only carries an orange ribbon for CRPS awareness and a purple ribbon for chronic/persistent pain, BOH carries HOPE.

  • Hope that more people today understand the complexities of CRPS
  • Hope that more people will receive early diagnosis
  • Hope that more people will receive better treatments and success with new treatments
  • Hope that research will one day find a cure
  • Hope that education & awareness never stops
  • Hope that more and more people will get behind BOH and help make a difference

A life-size BOH mascot was made in 2016 by the TPBF crew. BOH raised awareness, educated and entertained thousands & thousands of people at The Man from Snowy River Bush Festival in 2016. There is no doubt BOH draws a crowd and raises awareness.

The Purple Bucket Foundation Inc. Supports “Color the World Orange”

“Color the World Orange” was first established in 2014 in America. Many supporters like us across the globe joining in; by wearing orange in November and hosting events to spread awareness about CRPS. Many other groups and organisations across the globe focus their awareness campaigns at this time of year in their home countries, to take advantage of this lighting spectacular by participating to show support and also help raise awareness for CRPS.

Often more than 100+ well-known buildings, bridges, and landmarks in countries (including Australia) across the globe will turn orange for ‘Color The World Orange day™’ #CRPSORANGEDAY #TPBF the 1st Monday in November (every year)  

Carers count

The Purple Bucket Foundation believes carers count too. In 2014 the carers count emblems were completed, in recognition of the people who are carers for people living with CRPS and chronic/persistent pain.
Carers are often family members or friends; they are the people that live alongside the people with this condition 24/7. Carers see everything, the pain, the anguish, the confusion, and frustration. They also see the smiles and relief when a treatment works, pain management is successful and life improves.

The Purple Bucket Foundation encourages carers to remain as active and positive as possible and to continue encouraging the people they care for to also remain as active and positive as possible. You will find links to assist with different strategies on this website.

Carers are often the silent heroes.

2016 - 2017

Australian Register of Therapeutic Goods

The Purple Bucket Foundation Inc. received notification that their application to have the medical device Scrambler Therapy® Technology MC-5A, CE Certification 0476, had been approved for supply in Australia and registered with the Australian Register of Therapeutic Goods.
This paved the way for Scrambler Therapy® Technology MC-5A to be available within Australia. Also enabling practitioners/operator’s direct access to the standard official training course, which certifies the operator to the correct methodology usage of Scrambler Therapy® Technology MC-5A and the dedicated software designed exclusively for Scrambler Therapy. You will find links to further Scrambler Therapy information on this website.

2018

In 2018 TPBF crew made a 14-litre bucket size BOH and a purpose build remote control skateboard was custom built by Chris Muller, to again bring attention to what we do, get the crowd in, raise awareness and education about CRPS Chronic/Persistent Pain.

I kid you not when people see a purple bucket with a smiling face scooting around on a skateboard, they want to know why………so we tell them…………..Then they go home and tell their family and friends they met BOH the little purple bucket on a custom build skateboard raising awareness for CRPS. 

The Purple Bucket Foundation Inc. secured;

  • corporate sponsorship with Fraser shores developments
  • awareness partners within the local corporate community
  • Exhibitors Booth at the 2019 Australian Pain Society 39th Annual Scientific Meeting. In the IASP Global Year Against Pain in the Most Vulnerable. 7 - 10 April 2019 | Gold Coast Convention and Exhibition Centre, QLD. http://www.dcconferences.com.au/aps2019/exhibitors

2018 - 2021 and beyond

The Purple Bucket Foundation's ongoing membership with Suicide Prevention Australia enables us to keep eyes and ears on the National Suicide news and information, and has allowed us opportunities to ensure CRPS and Persistent Pain are not left unnoticed.

Having two of our committee members attend the joint Roses in The Ocean Lived Experience Summit and 31st International Association for Suicide Prevention World Congress, June 2018, enabled our voices to be heard.

We are committed to raising awareness and bringing attention to the dangers of Suicide within the CRPS and Persistent Pain communities. 

No More Suicide From Pain

2012 – 2018 and beyond

All committee members associated with The Purple Bucket Foundation Inc. are unpaid volunteers, working together to build a better future for people living with CRPS and Persistent Pain.  

Treatment and Therapies

Treatment and Therapies

There is no cure for complex regional pain syndrome (CRPS). The goal of treatment is to decrease your pain and other symptoms, restore function to the affected limb and maintain the quality of your life.

It’s important to start treatment early in the course of CRPS. This is because CRPS can cause the affected limb to stiffen over time, the pain usually worsens without treatment, and movement becomes more and more difficult.

Treatment of CRPS requires a combination of approaches carefully managed by physicians and therapists who are experienced in this complex condition.

Treatment methods include:

Physical therapy and occupational therapy: A physical therapist can help improve blood flow to your affected limb as well as increase your flexibility, strength, muscle tone and function. An occupational therapist can teach you new ways to accomplish everyday tasks.

Mirror therapy: This treatment technique uses a mirror to trick your brain into perceiving movement in the affected limb without pain. Looking at the reflection of the movement of your unaffected limb in a mirror fools your brain into thinking you are moving two normal limbs.

Desensitization: This technique involves touching the affected area with materials of different textures and weights and even placing the affected limb into the water of warmer and cooler temperatures. By exposing the affected area/limb to different sensations slowly over time, your brain adjusts to the sensations and pain begins to lessen.

Psychotherapy: Having CRPS increases anxiety, depression and stress, which can increase pain. Psychotherapy (“talk therapy”) involves learning ways to better cope with these and other factors that contribute to your pain and disability.

Medications: No medications are specifically approved for CRPS. However, many drugs from different drug classes can be tried. Topical analgesic creams and patches (such as lidocaine) might help relieve pain. Other aesthetic medications and/or medications that have pain-reducing effects include ketamine, dextromethorphan, opioids, some antidepressants (such as amitriptyline and duloxetine [Cymbalta®]), anti-seizure drugs (such as gabapentin [Neurontin], pregabalin [Lyrica®], topiramate [Topamax®]), nonsteroidal anti-inflammatory drugs (such as aspirin, ibuprofen [Advil®, Motrin®], naproxen), bisphosphonates (such as alendronate [Fosamax®]) and botulinum toxin injections.

Choice of medication(s) to begin with varies from patient to patient. Your healthcare provider will consider such factors as your age, other existing health conditions, any current medications you are taking, and the potential for medication side effects or interactions with the current medications you are taking.

Alternative therapies for reducing pain: Among these methods are cognitive behavioural therapy, biofeedback and other relaxation techniques, acupuncture, hypnosis, reiki, and chiropractic.

If your CRPS has not responded well to the medications mentioned above or you have severe pain or ongoing CRPS, the following more invasive treatments can be tried:

  • Sympathetic nerve blocks: These blocks can provide significant pain relief for some people. One kind of block involves injecting an anesthetic next to the spine to directly block/interrupt the pain signal.
  • Intrathecal drug pumps: This treatment involves using an implanted catheter to send pain-relieving drugs, such as ziconotide (Prialt®), right into the spinal fluid.
  • Spinal cord stimulation: This treatment involves surgically implanting a pulse generator device under your skin in your abdomen or buttock and electrodes near your spinal cord. The device, which is similar to a pacemaker, sends low-level electrical current to the spinal cord. Electrical pulses stimulate the nerves where your pain is felt. These pulses interfere with the pain signal being sent to the brain. This treatment is usually considered only if you are in severe pain and all other treatment methods have failed to reduce your pain.
  • Dorsal root ganglia stimulation: This treatment is similar to spinal cord stimulation except that the electrodes are implanted on the dorsal root ganglion, which is a cluster of neurons in the root of the spinal cord. The stimulation is a more targeted therapy that concentrates stimulation where doctors think the pain originates. Again, like spinal cord stimulation, it is usually considered only if you are in severe pain and all other treatment methods have failed to reduce your pain.
  • Scrambler Therapy: Learn more here

Again, the choice of treatment, length of treatment, and how soon to try these more invasive treatments will vary from patient to patient. Discuss these options with your healthcare provider and ask if any are appropriate for you (if needed).

https://my.clevelandclinic.org/health/diseases/12085-complex-regional-pain-syndrome-crps#:~:text=Researchers%20have%20found%20certain%20signs,nerves%20in%20the%20affected%20area.

Yet, there seems to be some leaning toward following the UK Guidelines as found here:

https://www.rcplondon.ac.uk/guidelines-policy/complex-regional-pain-syndrome-adults

Team

Multidisciplinary team

Each person’s experience with CRPS is different.

Symptoms in some people go away (remission), remain the same or lessen. In others, CRPS will get worse and even spread to other areas of the body. Each person’s outcome is difficult to predict.

The most important goals are to relieve pain and restore movement and strength in the affected limb. By achieving pain relief, you increase the odds of improving function and quality of life. Carefully selected medications allow some patients with CRPS to successfully manage their pain and lead active lives.

 Multi-disciplinary treatment of CRPS is essential for optimal outcomes.

Therefore, healthcare providers must work with each other, and the patient, as a team.

Whether you are an anesthesiologist, neurologist, pain specialist, or primary care physician, you should also include a physical therapist, occupational therapist, pain psychologist, and possibly a vocational specialist on your management team.

Patients with CRPS have high rates of psychiatric comorbidity. A survey hosted on the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) website found that 77.2% of patients reported feelings of depression and 78.2% reported periods of anxiety.² Alarmingly, half of the patients (438/888) reported having considered suicide at some point during their illness, with 66 (15.1%) of these patients attempting suicide.²

 https://www.practicalpainmanagement.com/pain/neuropathic/crps/how-can-healthcare-providers-better-advocate-patients-crps

With complex and very high pain levels as well as severe psychological and emotional issues, the only way that CRPS can be effectively treated is by looking at the patient as a whole. The physical, psychological and emotional impact of this condition all needs to be accurately and sensitively researched, diagnosed and treated. This is why the only appropriate approach to treating complex regional pain syndrome is through using a multi-disciplinary team, with each professional working effectively in their area of expertise, to treat the condition and give patients back their lives!

https://www.londonpainclinic.com/complex-regional-pain-syndrome/why-complex-regional-pain-syndrome-requires-a-multidisciplinary-approach/

If you need assistance finding a health professional in your area, you may find Painaustralia's Pain Directory helpful.