Like many things, The Purple Bucket Foundation was created out of need. The need for support, information and understanding. While there was more than enough information coming from American sources, there was little, if any, from home soils, and that was where it was needed.
What is The Purple Bucket Foundation Inc.?
Our Vision is to fill the gaps for those living with CRPS and other Chronic Pain conditions. Our Purpose is to optimise their lives, and why? Because CRPS and chronic pain are life shattering to say the least and not only for the person with the diagnosis.
Raising awareness about CRPS in the broader community would have to be our greatest tool in assisting us to fulfil our purpose. Knowledge is by far the best weapon in the fight for anything.
CRPS; Complex Regional Pain Syndrome: It’s been around for over 150 years, it affects children, men and women, it was once said that CRPS only affects the limbs but it has been diagnosed in eyes – backs – heads – mouths and organs. CRPS is considered the most painful condition known to doctors, there is no cure and barely any treatment that works without nasty side effects, research and trials are very slow in coming.
There are FOUR Main Symptoms/Criteria of CRPS:
1.Constant chronic burning pain - The pain, which is usually significantly greater than the original event/injury; though the affected area may feel cold to the touch to the patient it feels as though it is literally on fire; and is ranked as the most painful form of chronic pain today by the McGill Pain Index. This symptom also includes allodynia which is an extreme sensitivity to touch, sound, temperature, and vibration.
2.Inflammation - this can affect the appearance of the skin, bruising, mottling, tiny red spots, shiny, purplish look; as well as affect the skin temperature of the affected area, cause excessive sweating, etc.
3.Spasms - in blood vessels (vasoconstriction) and muscles (sometimes referred to as rolling spasms) of the extremities.
4.Insomnia/Emotional Disturbance - includes the major changes to the limbic system such as short-term memory problems, concentration difficulties, sleep disturbances, confusion, etc.
There are a great many additional symptoms that can also occur over the course of the disease. Not every patient will have all of the symptoms and the symptoms may change over time due to the stage the patient is in, the medications the patient is on, the treatments the patient is receiving, and even such things as time of day/month/season, and whether or not she/he is currently under excess stress!
CRPS is a chronic nerve pain condition. It is because of this that CRPS sufferers are able to appreciate the Chronic Pain felt by those with Fibromyalgia, Chronic Cancer Pain, Chemotherapy Induced Nerve Pain, Diabetic Nerve Pain, Back Pain, Sciatic and Lumbar Pain, Chronic Neuropathic Pain and the numerous other nervous system chronic pain conditions. CRPS can cause and create further ailments and conditions: Dystonia, depression, anxiety just to name a few.
It is the difficulty in diagnosis, treatment and ongoing care that creates the gaps for those suffering from CRPS and other Chronic Pain conditions; these are the gaps we at TPBFI intend to fill.
Add your voice to raise awareness about CRPS and Chronic Pain - become a member today. Membership Form
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NON PROFIT ORGANISATIONS CRPS RSD PAIN
P.O. Box 5602. Torquay, Qld. 4655. Ph: 0411 147 367. Email: firstname.lastname@example.org